Welcome to the companion site
Why we built a home online for the book: a place for the photographs, the fuller story, and the people it has reached.
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Notes & reflections
Occasional writing from the family behind the book, on the story, the photographs, and the road since.
The photographs, and why they matter
A few words about the images in the book: where they came from, and why we kept them all these years.
Read postFor families just beginning this road
If you have just been handed a diagnosis you did not expect, this one is for you.
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